Thursday 17 October 2019

Catching up

My apologies for the lack of updates. When I last wrote, we were getting ready to go on our cruise which we were thrilled and very surprised that the doctor released Eric to go. As our trip was concluding and we were making our way back to port on Friday for our Sunday arrival in Fort Lauderdale, Eric received news that his Dad had fallen, suffered a head injury, and was in the hospital. On Saturday he was moved to hospice. We rushed against all odds to get an earlier flight home on Sunday, pulled it off, and Eric was able to get to be with his Dad Sunday and Monday. His Dad passed away on Tuesday. So it's been a whirlwind to say the least.

As for Eric's health, his labs continue to show great results and an excellent response to the treatment. He received his infusion treatment on 10/3 and continues taking the very costly Venetoclax ($11,300/ month) daily and will do so through June. We are not looking forward to starting a new year of deductibles and co-pays beginning January 1, when we will have to pay the full $6000 out of pocket for the first refill of the year. For those who might wonder, the cost of treatment is about $30,000/ month. We're thankful we have insurance even though we are still on the hook for $6000/year in addition to our premiums.

Eric's next treatment is October 31 and we are coming to the end of the 6 courses of the infusions. The last one will be around Thanksgiving. He will have followup scans in November or December that will allow us to see how everything is looking from the inside.

Thank you to our friends and family who read these updates and who ask about Eric's health and pray for him.

Maureen